Patients with Parkinson’s disease already face poorer mental and physical health, but now a new study shows they also suffer from decreased levels of hope and self-esteem due to the stigma associated with their disease. “There are patients who don’t even disclose the disease to family members because they’re afraid that the children may change their opinion of them or start making plans to put them in a nursing home or take over their finances or freedom to some degree,” said Dr. Alessandro Di Rocco, a professor of neurology at the Zucker School of Medicine at Hofstra/Northwell in Hempstead, N.Y. The study found that when most people think of Parkinson’s, they imagine older white men who are drooling, shaking and hunched over. This singular image can be damaging to people with Parkinson’s who differ in race, gender or age, and can lead to misdiagnosis or a delay in diagnosis. Furthermore, those who have several visible, physical symptoms of the disease can face greater stigma and even discrimination. And those fears are illustrated in the research, which found that more than half of people with Parkinson’s conceal their diagnosis for fear of stigma. For example, actor Michael J. Fox, who has Parkinson’s and spearheads The Michael J. Fox Foundation for Parkinson’s Research, kept his illness hidden for years before coming out to the public. Having symptoms… read on > read on >







